I was recently reminded of what my life used to be like before Trikafta® — and I immediately felt guilty for forgetting. But ...

The Cystic Fibrosis Foundation conducted a national survey of people with cystic fibrosis, families, and clinicians to understand how CF care centers can adapt to meet the changing needs of people ...

Caring for a child with CF can be a lot to juggle — from the many medications and daily treatments to the endless doctor's appointments. But I’ve found a system that helps me stay organized and stress ...

A brief overview of cystic fibrosis, how it can impact people who have it, and how you can help. Our mission is to find a cure for every individual with cystic fibrosis, and make sure they have the ...

Every May, the cystic fibrosis community comes together for CF Awareness Month. The theme of this year’s CF Awareness Month is, “Resilient.” The Cystic Fibrosis Foundation has shareable resources to ...

Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. There are close to 40,000 children and adults living with cystic fibrosis in the United States — ...

Dear Rep. McGee, Rep. Creekmore, Rep. Hood, Sen. Blackwell, Sen. Boyd, and Sen. Wiggins: On behalf of those living with cystic fibrosis in Mississippi, we support efforts by the state to increase ...

Dear Members of the House Corporations Committee: On behalf of the over 110 people with cystic fibrosis in Rhode Island, we write to express our support for H 8041, which would require insurers to ...

Thank you for the opportunity to submit comments on Florida’s 1115 CHIP Eligibility Extension. The undersigned organizations represent millions of individuals facing serious, acute and chronic health ...

With topics ranging from emotional health to treatments, the blog is a platform to share your unique story. We invite adults and teens with CF, parents, siblings, spouses, friends, loved ones, ...